Meaning making and fertility in children and adolescents with life-limiting illnesses (MAGICYL)

This week’s EBN Twitter chat on Wednesday 19^vol September from 8pm to 9pm (UK time) will probably be run by the MAGICYL team and can deal with dignity therapy and meaning-giving activities for youngsters and young individuals with life-limiting conditions. Participating within the Twitter chat requires a Twitter account; If you do not have one yet, you’ll be able to create an account on www.twitter.com. Once you will have an account, contributing is simple. You can follow the discussion by trying to find links to #ebnjcor become involved by creating and sending a tweet (tweets are text messages limited to 280 characters) to @EBNursingBMJ and add #ebnjc (EBN Twitter chat digest tag) to your tweet, so all participants will have the option to see your tweets.

MAGICYL team @Zespół_MAGICYL

The MAGICYL team got here together because of a shared passion that the dignity of all and sundry in various care settings and life expectancy is crucial and a core value in the supply of care. Dignity is supported when a person’s physical, emotional, and spiritual needs are understood, valued, and met (McSherry, 2010). In the context of life-limiting/life-threatening conditions, it is commonly assumed that because the disease progresses and the person becomes more depending on others, there could also be a lack of dignity or sense of dignity.Dignity therapy

Dignity therapy (DT) is a temporary psychotherapeutic intervention that helps individuals with shorter life expectancies see that they’ve meaning and purpose (Chochinov, 2012). DT was developed after Dignity Conse was builtrving Care Model (DCMC). The DCMC was developed from interviews with individuals with advanced cancer to find out what constitutes dignity and the way it could possibly be achieved or maintained through the experiences, care, and interactions of this population (Chochinov, 2002). During DT, trained specialists encourage patients to reflect and discuss their most treasured memories and share their hopes for the longer term. A generative (or legacy) document is created collaboratively based on the patient’s narrative and will be shared with others of the patient’s selecting before or after death. DT is gaining increasing popularity within the adult community, and research confirms its effectiveness in individuals with cancer and other diseases in end-of-life care and earlier stages of palliative care (Rodriguez et al., 2018).

Dignity therapy and meaning-making are activated in children and adolescents (CYP)

AND A recent review by two members of the MAGICYL team found that only 4 studies examined DT and related meaning-making interventions in young people: one focused on young people (7–17 years), the remaining three included young people, but the typical age was 50–70 years. DT and related meaning-making interventions can improve well-being and support families, but they must be developed and evaluated to make sure they meet the needs of CYPs and their families. Our youth and past profession engagement activities have shown that a DT-type intervention can be welcomed. Meaning-making and generativity – doing activities that can encourage a way of meaning and purpose and remembering that person are essential for CYP and families, but professionals are hesitant about implementation in practice.

This Twitter chat will consider the next questions:

1. Is dignity therapy relevant to CYP for life-limiting/life-threatening conditions (including younger populations)?
2. Are meaning-making and creativity measures already being taken as a part of CYP take care of life-limiting/life-threatening conditions?
3. Could a number of the meaning-making activities already undertaken be utilized in an intervention comparable to Dignity Therapy for CYP?

Useful reading

Chochinov, HM (2002) Dignity-preserving care: a brand new model for palliative care. JAMA, 287, 2253-2260.

Chochinov, H M. (2012) Dignity therapy: the last words of recent days. Oxford: Oxford University Press.

McSherry, W. (2010) Dignity in care: meanings, myths and the fact of its implementation in practice. Nursing Times, 106(40), 20-23.

Rodriguez, A., Smith, J. and McDermid, K. (2018) Dignity therapy interventions for young people in palliative care: a rapid structured review of the evidenceANDinternational journal of palliative nursing24, (7), 112-121.

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