Policy

Social involvement of patients in research

Published

9 months ago

May 5, 2024

Dr Joanna Smith, Associate Professor of Pediatric Nursing, School of Health Care, University of Leedsjesmith1@leeds.ac.uk

Dr Alison Rodriguez, Lecturer in Child and Family Health, School of Healthcare Health, University of Leeds, amrodriguez@leeds.ac.uk

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Patent Public Involvement (PPI) is embedded in UK Government policy (Health and Social Care Act 2012) and the requirement for health and social care organizations to develop and conduct research on key health research funding bodies. Furthermore, the importance of high-quality PPI is increasing within the UK’s Research Excellence Framework (REF) (https://www.ref.ac.uk/about/whatref/), where universities are judged on the standard of their research and its impact .

In the mid-Twentieth century in Great Britain, the national advisory group INVOLVE was established inside the National Institute for Health Research to actively support public involvement in health and social care research. In general, PPI in research is each ethically and morally desirable because PPI activities: improve the relevance and quality of clinical trials by shaping research designs to reflect patient priorities and outcomes; value patients and supply meaningful, participatory relationships; and enhances the beneficence and harmlessness of research.