Palliative care – it’s my care, my right

Palliative care: it’s my care, my right

Our next Twitter chat will likely be on Wednesday, October 9 at 8pm UKC.

That is a chance so that you can share innovations, experiences and evidence out of your palliative care practice using the hashtag #EBNJC. We’re particularly fascinated with equality – what obstacles have you ever encountered in accessing palliative care? What are some solutions?

Palliative care is a human right, yet access to equitable end-of-life services shows unacceptable variations all over the world. Every year, greater than 25.5 million people die from serious physical and mental suffering attributable to illness, injury or disease. This number includes 2.5 million children. Greater than 80% of those cases occur in low- and middle-income countries where access to immediate-release morphine, an important and reasonably priced pain reliever, and all other sorts of palliative care is severely lacking[1].

World Hospice and Palliative Care Day falls on Saturday October 12, 2019. It’s a collective day of motion to rejoice and support hospice and palliative services all over the world. People affected by life-limiting diseases hope that policymakers will hear their voices. It’s a day of motion aimed toward stimulating necessary changes in palliative care policy. That is a chance to boost awareness of the needs of individuals all over the world affected by inequality and hardship. Universal medical health insurance for end-of-life care is one in every of the important thing demands – calls on governments to be certain that everyone can access the promotional, preventive, curative, rehabilitative and palliative services they need, of sufficient quality to be effective, while ensuring that using these services doesn’t expose the user to financial difficulties

But what can individual nurses do? It’s crucial to be certain that all individuals with life-limiting illnesses have timely access to palliative care; as the biggest healthcare workforce, we regularly interact with people throughout their disease journey. Promoting access to care and enabling them and their families to plan to avoid financial hardship can go a protracted method to ensuring that dying is just not affected by avoidable challenges. Dying is difficult enough because it is.

Nurses and all those that provide palliative care can offer support in these efforts by engaging on this necessary dialogue, amplifying their message and showing solidarity. Use social media platforms to spread the message, tag local and national decision-makers, help increase the visibility of caregivers and volunteers in providing needed care.

Join us on Twitter chat on Wednesday and make your voice heard.

12^vol During October, follow the conversation on Twitter at #WHPCD19, #mycaremyright and follow @worldhospiceday to see activities happening all over the world and get entangled.

(Picture: patient and nurse, Phnom Penh, Cambodia )

Evidence Based Nursing usually publishes content on palliative care; recent topics included palliative take care of individuals with dementia, improving access to palliative take care of individuals with non-cancer conditions, the role of pain nurses and supporting hope at the tip of life.

[1] Connor Stephen R., Sepulveda Bermedo Maria Cecilia. (ed.) Global Atlas of Palliative Care on the End of Life. [London]: Global Alliance for Palliative Care, 2014

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